In progress…
Resources for Community-based Participatory Research (CBPR), Participatory Action Research(PAR), and Emancipatory Research (ER) involving researchers and co-researchers with (so-called) “serious mental illness.”
Books:
Schneider, B. (2010). Hearing [our] Voices: Participatory research in mental health. Toronto: University of Toronto Press.
Sweeney, A., Beresford, P., Rose, D., Faulkner, A., & Nettle, M. (2009). This is Survivor Research. PCCS.
Wallcraft, J., Schrank, B., & Amering M. (2009). Handbook of Service User Involvement in Mental Health Research. London: Wiley-Blackwell.
Research Articles:
Davidson, L., Stayner, D. A., Lambert, S., Smith, P., & Sledge, W. H. (1997). Phenomenological and participatory research on schizophrenia: Recovering the person in theory and practice. Journal of Social Issues , 53, 767-784.
Nelson , G., Janzen, R., Ochocka, J., & Trainor, J. (2010). Participatory action research and evaluation with mental health self-help groups and organizations: A theoretical framework. In L. Brown & S. Wituk (Eds.), Mental health self-help: Consumer and family driven initiatives . New York : Springer.
Nelson, G., Ochocka, J., Griffin, K., & Lord, J. (1998). “Nothing about me, without me”: participatory action research with self-help/mutual aid organizations for psychiatric consumer/survivors. American Journal of Community Psychology, 26, 881-912.
Schneider B, Scissons H, Arney L, et al. (2004). Communication between people with schizophrenia and their medical professionals: a participatory research project. Qualitative Health Research, 14: 562-577.
Your site has helped me and given me hope that soon I will find a way to share the fruit of 35 years of emancipatory research with anyone that needs it. survivor reseacher with as you say serious mental illness with no credentals but experience focusing on what works and yet causes no harm.
Thanks Fred. I really believe that there is a tremendous need for the voices of alternative mental health activists and users/survivors to be heard in the research world.
I’m not that computer literate,but I wonder if an open source “alternative mental health toolbox”could be created with catagories like ,alternative crisis modalities,helpful books,getting off meds,lowering dosages,previously unpublished personal discoveries that have helped me,1.-proper protocol silver mercury amalgem removal 2.-how to create a foundation to fund removal of amalgems for the vast number who can’t aford it .3.-the amazing cutting edge http://www.yuen method.com 4.-the best scientific explanation of why the A.M.A. is so disfuntional, It’s in the book “Sick and Tired” by Robert Young, of course Robert Whitacker’s books especially Anatomy of an Epidemic”,5.-safe alternatives to electric shock 6.-homeopathy 7.-.juice formulas 8.-herbal formulas
9.-alternative counseling 10.- various types of bodywork 11,excercize, swimming, jogging12.-gemstone combinations that alter conciousness 13.-mineral baths 14.-games like chess 15.-casting a global net for alternatives.16.-meditation,tai chi, yoga ,spirtuality,17.-traditional naturapathy linda page nd richard shultz nd 18.ph of the blood ,read robert youngs books “sick and tired “will explain scientifically why the germ theory is wrong.Really!
19.-vitamins,nutricuticals,amino acids20.-diet what helps and what to avoid 21.-parisite formulas,enzymes,probotics 22.-maintaining the blood brain barrier 23.-how to escape from a mental institution? 24.-how to keep your ssd while cutting down on meds,and even afterwords to fund your research or other activities.25.maybe info on some items must be passed in an underground fashion. thank you for letting me post . there will be more.
one more comes to mind 26.-what works to safely stop voices if you want to without losing your creativity.thank you
helpful resources google this> TheTruthAboutVaccinesandModernMedicine also > MercuryJustice.org also RobertFKennedyJr.com (on right side scroll down to link to a 68 pg pdf. file on Kennedys research into vaccines and autism . Be informed